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Les communiqués de presse

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CP Décembre 2021 - SAM 2021

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CP Octobre 2021 - Le Green de l'espoir

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CP 5 octobre 2021 : PLFSS 2022

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CP août 2021 : Virades de l'espoir

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Registre 2019 – Bilan des données

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CP 28 juin 2021 : Accord de Kaftrio® et Symkevi®

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CP 12 avril 2021 - Move For Muco

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CP 8 avril 2021 - Vaccination

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CP décembre 2020 - Stream Against Muco

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CP décembre 2020 - Bilan des données 2018

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CP Novembre 2020 - Kaftrio, avis favorable de la HAS

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CP Octobre 2020 - Campagne 2020/2021

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CP octobre 2020 - COVID-19 : Suspension du décret du 29 août 2020

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CP Avril 2020 - Covid-19 : Dispositif d'arrêt de travail étendu aux proches des patients

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CP 10 février 2020 - 15e anniversaire de la loi de 2005

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CP novembre 2019 - Accord Orkambi

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CP avril 2019 - 8es Entretiens de la mucoviscidose et AG à Rennes

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CP fév 2019 - Thierry Nouvel, nouveau directeur général de Vaincre la Mucoviscidose

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CP juillet 18 - Assurance emprunt : une 1ère avancée

Les dossiers de presse

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DP sept 21 - Virades de l'espoir

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DP Novembre 2020 - Kaftrio, avis favorable de la HAS

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DP août 2020 - Mucoviscidose : un défi, garder le souffle !

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DP - Sept. 2019 - Mucoviscidose : il manque 50 % des professionnels pour soigner les malades

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Dossier de presse - 13 septembre - Les Virades de l'espoir

Les apparitions médiatiques

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Revue de presse : Virades de l'espoir 2021 - Octobre 2021

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REVUE DE PRESSE : Accord de Kaftrio - juillet 2021

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L'Opinion : Tribune de Thierry Nouvel - 20 mai 2021

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REVUE DE PRESSE : Vaccination contre la covid-19 - 8 avril 2021

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Le Monde : Tribune co-signée avec 27 associations sur la vaccination

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Tribune de Pierre Lemarchal et Pierre Foucaud

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Tribune de France Générosités et de 84 associations et fondations

Espace Expertise

Dossiers de presse

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Handicap et Chômage – Juin 2021

Espace Témoignages

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#KaftrioMaintenant - Portrait de Cécile

Découvrir tous les dossiers et les communiqués de presse Le calendrier des évènements de l'association

Contact

Stéphanie BAZ, Responsable des relations médias
sbaz@vaincrelamuco.org
Tél. : 01 40 78 91 96

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