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Les communiqués de presse

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Publication du bilan 2022 du Registre français de la mucoviscidose

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Virades de l'espoir 2023

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Mucoviscidose : élargissement de l’accès au Kaftrio® pour les enfants âgés de 2 à 5 ans porteurs d’une mutation F508del

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Première mondiale : : 300 patients supplémentaires atteints de mucoviscidose vont pouvoir bénéficier de Kaftrio®

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Maxime atteint l'Everest !

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CNH : Handicap respiratoire

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Pierre Roland, parrain de la PLB MUCO

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Move for Muco 2023

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Kaftrio : Cadre de prescription compassionnelle

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DiTcap

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Réforme des retraites

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Bilan SAM 2022

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Kaftrio : Accessible pour les 6-11 ans

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SAM 2022 : 3ème édition de stream caritatif

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Route du Rhum : Baptême du bateau

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PLF - PLFSS 2023

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Bilan du registre 2021

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Virades de l'espoir 2022

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Déconjugalisation de l'AAH

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Accès compassionnel hors AMM Kaftrio

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Move for Muco 2022 - 2ème édition

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Nouveau logo de l'association

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Collectif Greffes+

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Revendications présidentielles

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Rando Muco 2022

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Assurance emprunteur : Fin du questionnaire

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La Pierre Le Bigaut

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Résultat SAM 2021

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SAM 2021

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Le Green de l'espoir 2021

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PLFSS 2022

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Virades de l'espoir 2021

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Registre 2019 – Bilan des données

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Accord de Kaftrio® et Symkevi®

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Move For Muco 2021

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Vaccination covid-19

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Stream Against Muco 2020

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Bilan des données 2018

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Kaftrio, avis favorable de la HAS

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Campagne de communication 2020/2021

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COVID-19 : Suspension du décret du 29 août 2020

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Covid-19 : Dispositif d'arrêt de travail étendu aux proches des patients

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15e anniversaire de la loi de 2005

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Accord Orkambi

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8es Entretiens de la mucoviscidose et AG à Rennes

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Thierry Nouvel, nouveau directeur général de Vaincre la Mucoviscidose

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Assurance emprunt : une 1ère avancée

Les dossiers de presse

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Les Virades de l'espoir 2023

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Les Virades de l'espoir 2022

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La PLB Muco 2022

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Virades de l'espoir 2021

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Kaftrio, avis favorable de la HAS

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Mucoviscidose : un défi, garder le souffle !

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Mucoviscidose : il manque 50 % des professionnels pour soigner les malades

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Les Virades de l'espoir 2018

Les apparitions médiatiques

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Tribune collective assurance emprunteur - Le Figaro Vox février 2022

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Revue de presse : Virades de l'espoir 2021 - Octobre 2021

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REVUE DE PRESSE : Accord de Kaftrio - juillet 2021

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L'Opinion : Tribune de Thierry Nouvel - 20 mai 2021

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REVUE DE PRESSE : Vaccination contre la covid-19 - 8 avril 2021

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Le Monde : Tribune co-signée avec 27 associations sur la vaccination

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Tribune de Pierre Lemarchal et Pierre Foucaud

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Tribune de France Générosités et de 84 associations et fondations

Espace Expertise

Dossiers de presse

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Tribune de Pierre Foucaud

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Handicap et Chômage – Juin 2021

Espace Témoignages

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Juliette, patiente atteinte de mucoviscidose

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#KaftrioMaintenant - Portrait de Cécile

Découvrir tous les dossiers et les communiqués de presse Le calendrier des évènements de l'association

Contact

Elodie Audonnet, Responsable des relations médias
eaudonnet@vaincrelamuco.org
Tél. : 01 40 78 91 96

elodie

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