Where and how ?

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Provision and organisation of care
 
Cystic fibrosis (CF) is a complex disease that requires comprehensive care from a multidisciplinary team and coordination of both hospital and home care. In order to be effective, this comprehensive care requires the existence of a veritable healthcare network.

For this reason, "Vaincre la Mucoviscidose" has encouraged the creation and development of expertise centres adapted to the complex nature of CF and prompted the establishment of CRCMs, Cystic Fibrosis Resource and Competence Centres throughout France.

The patient can benefit from at least four consultations per year (6 over the first year of life) with a physician (paediatrician or lung specialist according to the age), a nurse and a physiotherapist present at each consultation. At least once per year, and according to the needs, patients also see a dietician, a psychologist and a social worker.

Healthcare networks, which organise the coordination, continuity and quality of care outside of hospitals, at home and in community professionals’ offices, are being developed around the CRCMs, which coordinate and centralise hospital care in a single location.

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